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To review, this is the most severe form of Spina Bifida. It happens when parts of the spinal cord and nerves come through the open part of the spine. It causes nerve damage and other disabilities. Seventy to ninety percent of children with this condition also have too much fluid on their brains. This happens because fluid that protects the brain and spinal cord is unable to drain like it should. The fluid builds up, causing pressure and swelling. Without treatment, a person’s head grows too big, and may have brain damage. Children who do not have Spina Bifida can also have this problem, so parents need to check with a doctor.
There are so many different levels of spina bifida and the nerve damage caused also ranges. My mother has spina bifida and she cannot walk, but there are others that can use crutches, and some people with spina bifida can walk and run just fine.
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