Resources for those with Spina Bifida

Spina Bifida can be emotional, physically, and financially taxing. There are a lot of aids that I could find on the internet and support groups. I'll list their links on this page and a short description of what each is.

1. Support Groups & Play Groups; on this page there is a list of support and play groups for those with/or with children who have spina bifida. There are multiple cities and states listed. See if yours is there :)

http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8647429/k.9E6C/Support_Groups__Play_Dates.htm

2. Get Your Questions Answered: on this page there is a question form or a number you can call. These people will answer your questions and support you in your quest for finding the truth.

http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8271987/k.9F92/Ask_the_Expert/apps/ka/ct/contactus.asp?c=evKRI7OXIoJ8H&b=8271987&en=clKNL3OLJbKWKdPOJaJTL9NYJpLXLhP1JjJVJiP6IzH

3. Learn about becoming an advocate for spina bifida: this page contains helps on knowing how to become an advocate

http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8029661/k.9C75/SPEAK_for_SB.htm

4. Financial Help: on this page is a LONG list of financial aid to help pay for the costs of those with spina bifida.

http://www.spinalcord.org/resource-center/askus/index.php?pg=kb.printer.friendly&id=10

5. Online Chat/Support Group: on this page you can help others, or ask questions

http://spina-bifida.supportgroups.com/

6. Chad's blog; he has lived with spina bifida and shares some of his insights. It is up to date and a good read.

http://iammorethanjustdamagedgoods.com/