Since OSD is an inside deformity it can be sometimes hard for doctors to detect, even with an x-ray. To review the basics of Occult Spinal Dysraphism see my previous blog post.
Gehnnah shared her story of having OSD and her hope for parents who may question if their children have the handicap:
I am 34 years old and was diagnosed on 5/10/12 with spina bifida occulta. I have always had a dimple on my lower back just above the buttox and I have always had lower back pain. My parents unfortunately didn't notice the dimple and for the most part thought that as a kid being outside and playing it'd be normal for me to complain of pain. When I was 12 my mom took me to a doctor for xrays and the doctor told her I needed to see a specialist. She was not able to afford it because my parents had divorced and therefore I have waited suffering in pain my entire life where many occasions of temporary paralysis did occur. I not only have spina bifida occulta, but degenerative arthritis in the thoracic region of my spine accompanied with mild scoliosis. I see a rheumatologist on Tuesday. I hope I have shed some light on some who have seen dimples or abnormalities on their children. They say most will not have symptoms of spins bifida occulta because it's the mildest form of spina bifida but I must say I do not wish the constant pain I feel on anyone ever.
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